Information for people with Parkinson's and their Carers
Find out about local services for people with Parkinson's and their carers. We are always looking to share more information so please contact Maggie if you have any ideas.
There is more helpful information on our useful links page.
- Parkinson's Local Advisors provide one-to-one information and support to people with Parkinson's, their families and carers.
- This may include benefits advice, emotional support and links to local and other services.
- Anne Sage is our local advisor
Tel: 0844 225 3762
- Please remember that Anne is here to provide:
- Up to date information about Parkinson's.
- Information and links to local services that can help you.
- Information about benefits, and help with the application process.
- A supporting voice if you need to complain or are having problems getting your needs assessed or met.
- Emotional support for you and your family.
Social Care Assessment
- An adviser will talk to the client about their needs and see if a referral is appropriate.
- A social care assessment will allow the healthcare trust to assess your needs and help you on making day to day living easier.
- The Staff at the Solihull Connect Contact Centre will also be able to advise you on the types of services available.
Parkinson's Nurses and Clinics
The specialist Parkinson's nursing provision for our area changed in September, 2012. The nurses allocated to Birmingham and Solihull are working as a team. There are four community-based nurses: Rose Crouch, Sarah Coyle, Maggie Johnson and Debbie Liberato.
Sarah and Rose are based at: Moseley Hall Hospital (Alcester Road, Moseley, B13 8JL). Contact number – 0121 466 6194.
Maggie and Debbie are based at The Harlequin Surgery (160 Shard End Crescent, Shard End, Birmingham). Contact number – 0121 465 2839
Nurses: The nurses are working as a team – i.e. there is no designated nurse for a particular area or individual. Patients were previously allocated to a Parkinson's Nurse depending on their consultant, the hospital they attended, or where they live. Now all referrals are sent to the Harlequin Centre.
There is a helpline operating from this centre from Monday to Friday (0121 465 2839 during working hours). Patients can phone with concerns or enquiries. Every clinic has a slot for the newly diagnosed and for urgent referrals.
There is an education programme for the newly diagnosed.
Home visits: These are for house-bound patients only.
Appointments: people can make their own appointments (as long as
they have had a diagnosis of Parkinson's) by contacting the Harlequin surgery; telephone no. 0121 465 2839 (during working hours from Monday to Friday)
- Solihull Parkinson's Nursing is covered by Birmingham East and North Parkinson's Nursing. Contact details can be found here.
|Partners in Health, Yardley||AM|
|Sutton Cottage Hospital||All Day|
|Partners in Health, Yardley||All Day|
|Perry Trees, Erdington||AM (alternative mornings)|
|Birmingham Heartlands Hospital||PM|
|Soho||AM (alternative mornings)|
|Partners in Health, Yardley||PM (alternative afternoons)|
|Moseley Hall Hospital||AM|
|Consultant's (Dr Dunston) clinic||PM|
|Partners in Health, Yardley||AM|
Carers' Support Groups
Caring With Confidence
- Any carer who is interested in attending a free course on 'Caring with Confidence' can get in touch with Stephanie Waters, who is the Project Manager, on 0845 2593163 or by Email to firstname.lastname@example.org
Solihull Carers Centre
- Solihull Carers Centre provide a lot of help for carers in our area. They have an excellent website and also send out regular news letters that include useful information as well as offers of subsidised outings and free sessions of massage and reiki etc..
- They also can arrange for the carer and the person with Parkinson's to have an assessment (local authority also do these ) as to their needs - this is the key to getting more help (through an appointed social worker ).
- You can contact them on 0121 788 1143.
- Birmingham Carers (who pay your council tax to Birmingham City Council) can apply for a carer's grant of £250.00.
- Phone Birmingham Social Care and Health on 0121 303 4044 and ask for a Carers Holiday Grant Application form. The grants can be used for holidays, respite care, equipment etc. among other things.
Birmingham Carers Center
- Birmingham Carers Centre is located at 130 Colmore Row, Birmingham B3 3AP. Telephone helpline: 0121 675 8000.
- They produce a monthly newsletter which gives details of the events taking place at the centre.
Emergency Care in Solihull
- Adult Social Care can provide emergency care if carers need it (for example if the carers themselves are suddenly taken ill).
- There are five teams of people who can respond in an emergency.
0121 704 8007 (front door office)
0121 605 6060 (out of hours)
- The branch has a duty of help and support to all carers and has made an arrangement with a branch of the Family Care Trust who operate a day centre in Bentley Heath.
- We have been allocated places on two days a week, Mondays and Thursdays, for members with Parkinson's. We fund their stay for the day, but they organise their own transport and pay for their own lunch.
- This is very popular with the carers giving them a some independence for just a few hours.
- Please contact Roy for further information. Places are very limited so please be sure to book well in advance to avoid dissapointment.
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