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Research Roundup
 
Our Research Support Network (RSN) connects you to Parkinson’s research.

Read on for the latest news and opportunities for you.

Creating drugs to restore mitochondria and stop Parkinson’s 
Dr Heather Mortiboys gives an update about her exciting Parkinson’s Virtual Biotech project which aims to create new drugs that can rescue failing mitochondria.Read the blog

Researchers move closer to a test that can sniff out Parkinson’sInspired by a woman’s ability to smell Parkinson’s, researchers have developed a new technique that can identify Parkinson’s based on chemicals found on the skin. 
 Read the whole story
Vision: An insight into the brainResearchers show that changes in vision could predict the development of thinking and memory problems in people with Parkinson’s.
 Find out more

Upcoming events and dates for your diary

World Parkinson’s Day
On Sunday 11 April we will be celebrating World Parkinson’s Day with a free, 1 hour live event between 11am – 12pm. It will discuss the most important topics chosen by you, including the latest developments in research. Read more about the event

Technology and Parkinson’s event: Part 3
The Dundee Research Interest Group and the 
Special Interest Group for Parkinson’s and Technology, invite you to the final research event in their series.
When: Saturday 27 March, 2:00pm to 4:45pm
Where: Online via Zoom Register to join the eventSave the date: World Parkinson’s Congress 2021Taking place online for the very first time on 17 – 21 May 2021. There will be a variety of research talks and a series of sessions focusing on living well with Parkinson’s.

Registration opens on April 1st 2021.Read the full line up

Latest research opportunities
Participants needed: Reporting falls in Parkinson’s Dr Rosie Morris at Northumbria University has developed an app to record falls and near-misses experienced by people with Parkinson’s. They now want to test the app.

Who do the researchers need?
20 people diagnosed with Parkinson’s who have access to an android smartphone.

What is involved?
Downloading the app to your smartphone to record falls and near-misses for 6 months. 
 
For more information, please read the participation information sheet.

Interested in taking part?
Please contact Rosie via email, Rosie.e.morris@northumbria.ac.uk, or phone 07540480036 before 30th April 2021.
 
This opportunity is not managed by Parkinson’s UK.Email Rosie to take part

Participants needed: Investigating caregiver satisfaction with support groups
Bethany McLoughlin at Warwick University is investigating how caregivers feel about support groups moving from face-to-face to online over the last year. The aim of the research is to create guidelines for organisations about what caregivers find accessible and valuable.

Who do the researchers need?
200 people who are the main caregivers for people with dementia and who attended face-to-face support group meetings before March 2020. 

What is involved?
Filling out a short online questionnaire, you can also request a version via the post. More information is in the participant information sheet.

Interested in taking part?
Go to the study website to find out more and take part in the research.
 
If you have any questions, please email Bethany at Bethany.mcloughlin@warwick.ac.uk, or phone 07849244621 before 30 April 2021.
 
This opportunity is not managed by Parkinson’s UK.Visit the study website Have your say: Physical activity and dementia Rebecca Hadley at the University of Hertfordshire is examining the ways physical activity can improve the quality of life for people living with dementia. The findings will be used to create guidelines to help improve the knowledge of the impact physical activity can have.

Who do the researchers need?
People who have Parkinson’s dementia, or dementia with Lewy Bodies. The researchers are also keen to hear from any carers, partners, or family members of people with these conditions. 

What is involved?
The researchers would like to have input on various aspects of the project, so you can get involved in a way that suits you. This will include attending meetings (on Zoom), reviewing documentation and advising the researchers on the study.
 
For further details about what is involved, please read the role description.

Interested in taking part?
Please contact Rebecca via email, r.hadley3@herts.ac.uk, to express your interest.Email Rebecca to express interest

 Caring for people with Parkinson’s related dementia
 If you care for someone with Parkinson’s dementia or dementia with Lewy bodies we want to know what’s important for you.
Complete the online survey so that the voices of carers are heard, and can influence changes to health and care services.Fill in the surveyVisit our research blogFind support for youTake part in research